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First symposium on BPAN Disease in France
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SYMPOSIUM


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Autour du BPAN is a dynamic association fighting against a rare and neurodegenerative desease BPAN (Beta Propeller Protein Associated Neurodegeneration). Its mission : supporting the medical research, the patients and their family. Though, the association is thrilled to announce the 1st Symposium in France dedicated to BPAN. This event, organised by the École Normale Supérieure of Lyon and our organization will take place on 13th/14th May 2022 in Lyon.

Our partnership with the researchers including Bertrand Mollereau from ENS…


With at least 4 years of existing, Autour du BPAN has been supporting several research projects in France. The ENS through the project of Prof Bertrand Mollereau about « drosophilia » (2) has been given a funding 40400€ by our association. It became natural that ENS and Autour du BPAN collaborate together to give you this Symposium.

From the beginning to the Symposium…


From the beginning our association has been organising meetings between different researchers that it finances. It allows these scientists to meet and exchange on their works. These exchanges could have been possible for example during the first « colloque » that took place in Ouches on September 2019 (3) or during the « Families weeks » in September 2020 (4) and September 2021 (5). The advantage of these meetings are numerous. They allow first of all the researchers to create a dynamic, a network. Then, some among them (who didn’t know each other before the invitation of the association) now work together for the BPAN. This is quite amazing ! On the other hand the researchers coming during our events allows the families to be aware of their works and advances that the funding has made possible. It also allows the researchers to go out of their lab and meet directly the young or adult ill, to observe symptoms and behaviours, and to have the opportunity to be aware of the families issues. We just love these moments full of emotion and sharing.

The advantage of this Symposium ?


This international Symposium will gather scientific experts from different countries (geneticists, neuropediatricians, neurologists…). Their new researches in the field will be presented. Then the researchers could exchange and for some just get acquainted, which is pretty rewarding because it could lead to possible collaborations, ideas and processes swap, and going out of the borders to progress in research.

For whom is the Symposium intended ?


This Symposium is open to everyone.

Friday 13th May is a day intended for the scientists and the medical teams… The language will be exclusively English. The exchanges will be only medecal and scientific ones.

Saturday 14th May will be more intented for the families, with a will of vulgarisation (to make explanations easier Tu understand) from the Friday exchanges made by some researchers.

For more information please click on the link below : https://www.autourdubpan.fr/symposium/




(1) Journay on the BPAN, during NBIA symposium have already taken place, especially during "an International Symposium on NBIA and Related Disorders"* organized by NBIA disorders from September 30th to October 3th, 2020. (* information updated on February 18, 2022: link disappeared following the publication of this article)

The 7th International Symposium on NBIA and Related Disorders , organized by NBIA Switzerland, which was scheduled to take place in October 2021 in Switzerland has been postponed to 13th/15th October 2022 in Lausanne.

(2) October 29th,209 - Article signing of the agreement with ENS de Lyon

(3) September 28th, 2019 - Around BPAN research

(4) September 26th, 2020 - Weekend families, researchers and volunteers together!

(5) September 2021 - Second edition of the Family Weekend!

Autour du BPAN - 2022/02/09