19-03-27
- Official publication of our first call for projects for this
year. Thanks to the efforts and kindness of all, we can participate
this year in the funding of BPAN projects:
19-03-23
- Closing of our Leetchi kitty: A big thank you to all: Clara
P., Mélanie B., François B., Jensen S., Josianne S., Christrine S.
,Carole L., Erwan S., Jean François B., Marilyne A., Fernande A.,
Eric S., Isabelle B., Yann S., Jeanine L., Christine W., Clemence
T., Kélène & Lolo, Pierre B., Delphine S., Alexandra A., Bruno
F., Armande H., Mélanie L., Hervé R., Pierre et Yvette A., Kessica
S., Doris P., Amélie Mam's, Eric C., Adelaine P., Nadia K., Carole
S., Olivier K., Jean Luc M., Anne-Marie B., Christiane S., Gérard
M., Delphine et Pascal N., Dan Dan, Gaby P., Alain P., David B.,
Benjamin H., Carol S., Irina D., Marie P., Isabelle et Philippe B.,
Franck T., Véronique et Jean K., Stéphanie B., Cécile & Stéphane
N., Delphine S., Doris K., Christine J., Estelle L., Severine C.,
Dominique G., Gersende H., Anna U., Kris S., Les Charf, Nicolas B.,
Françoise et Gilbert H., Dominique S., Dominique R., Christelle et
Damien J., Celine S., Stéphanie C., Emmanuel A., Aurélien C.,
Deborah S., Sophie et Vincent P. & D., Jeanne P., Benoït E.,
Stéphanie A., Bérangère P., Fanny P., Chloé B. and Corinne T.
19-02-10
- Lio officially announces that she becomes our godmother and
supports us in our fight.
19-02-07 - Our medical committee is officially constituted. Discover it by clicking here.
19-01-30 - Our association officially becomes a member of Alliance maladies rares.
19-01-20 - Redesign of this site.
18-12-28 - The logo is changed with the addition of a boy to represent BPAN more generally. The name of the site is changed in favor of Around the BPAN. These changes are made to bring more families together. This association has always been open to everyone and has always worked to fight the disease. The name of the association will be changed at our next General Assembly on April 13, 2019.
19-02-07 - Our medical committee is officially constituted. Discover it by clicking here.
19-01-30 - Our association officially becomes a member of Alliance maladies rares.
19-01-20 - Redesign of this site.
18-12-28 - The logo is changed with the addition of a boy to represent BPAN more generally. The name of the site is changed in favor of Around the BPAN. These changes are made to bring more families together. This association has always been open to everyone and has always worked to fight the disease. The name of the association will be changed at our next General Assembly on April 13, 2019.
